From the beginning of the outbreak in Taiwan after Mother’s Day to the present, I can not return to Taiwan University Hospital at all.<\/p>\n
Originally 5\/17 have regular visits, the results have been self-funded medicine, has been buying two months.<\/p>\n
Intestinal conditions are ups and downs, flare up comes once I stop taking steroids.<\/p>\n
I kept eating steroids repeatedly, and several times I was so tired of the world.<\/p>\n
On the day of the recent severe flare up, after twelve hours of pain, I decided to call my personal care manager.<\/p>\n
As a result, Dr. Chiu asked me to confine to the hospital, but I really didn’t have the courage to go with this critical pandemic.<\/p>\n
Because now all beds are all controlled by ER, hospitalization has to go through the emergency room, quick sieve plus PCR confirmed that there is no infection to enter.<\/p>\n
After having to stay in bed in the emergency room, thinking of the time to wait, I decided not to go, relying on steroids.<\/p>\n
Although Dr.Chiu doesn’t recommend it to me, because he feels that I had been ups and downs on steroids, Hope I will be hospitalized directly.<\/p>\n
The thought of emergency mess…. I couldn’t bear the courage at all, and finally swallowed four steroids to bring down the symptoms.<\/p>\n
Until now still can not stop medication, I hope July can go back to the doctor, otherwise really can not hold on.<\/p>\n
Our vaccine priority has been prospone serveral times, in fact, I am not worried about infected, because we are already in the epidemic prevention specifications in the life with IBD.<\/p>\n
But the failure to return to the doctor for major injuries is too cruel and hard for us! Government units please consider and care our needs.<\/p>\n
Taipei’s city government has been dragging taiwan into the critical pandemic situation and put it on a level three alert until mid-July.<\/p>\n
Really killed us patients, my Humira application has been rejected twice, self-funded needles for up to three weeks.<\/p>\n
These days the intestines are relatively stable, today originally decided to stop steroids, But cramping comes back right away.<\/p>\n
I was helpless… no choice for stopping the steroid treatment. I decided to take one pill a day until hospital return day in July.<\/p>\n
Otherwise, if the serious flare up happen again, I will have to take from a high dose, it will take more than a month to stop the drug.<\/p>\n
We are really a very vulnerable group of IBD patients, it is more difficult to apply for biologics, we are mpt pm tje vaccination priorities list either.<\/p>\n
Just hope that my intestines can be stable, do not keep attacking, the epidemic quickly slow down, so we can go back to the hospital.<\/p>\n
There is also a CT tracking of cancer in mid-July for me, and hopefully it won’t be delay again.<\/p>\n
Seeing that the group of patients has been discussing vaccines, and seriously, I think everyone should talk to our doctor.<\/p>\n
We are just patients, not doctors, giving other patient advice is not a good idea.<\/p>\n
Your doctor says you can be vaccinated, doesn’t mean it work for others.<\/p>\n
Your doctor won’t be responsible for that patient, will he? Several vaccines have their advantages and disadvantages.<\/p>\n
Although the advantages of the vaccine outweigh the disadvantages, but still have to consider everyone’s own situation, even IBD doctors have different opinions for treatment.<\/p>\n
Treatments are not the same, you know yourself the most, if interested in vaccines<\/p>\n
It is suggested that we should study more and understand more, and don’t listen to the political discussion.because you might lost the direction.<\/p>\n
I hope that during the severe outbreak, everyone can get through it safely!<\/p>\n
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